Advocacy & Research
Driving Change Through Inclusion, Innovation, and Equity
Our Advocacy & Research Approach
Representing Underserved Communities in Clinical Research
What We Do:
- Partner with top universities and research institutions to advocate for increased BIPOC representation in clinical trials.
- Educate patients on the importance of participation in research and their rights as trial participants.
- Collaborate with healthcare professionals to design studies that prioritize cultural competence and inclusivity.
Driving Innovation Through Strategic Partnerships
Future Research Partners and Initiatives
Planned Research Partnerships
Stanford University
Advancing MS research with a focus on underrepresented minority populations.
Stanford Johns Hopkins University
Investigating the connection between chronic illness and mental health in underserved communities.
University of Michigan
Exploring genetic factors that influence disease progression in BIPOC patients.
Mayo Clinic
Designing culturally tailored treatment plans to improve outcomes for chronic illness patients.
Anticipated Research Initiatives
Understanding Race and Ethnicity
Researching how cultural and genetic factors influence disease outcomes.
Breaking Down Healthcare Barriers
Addressing challenges faced by patients in rural and urban underserved areas, including access to care and treatment options.
Mental Health and Chronic Illness
Examining the psychological impacts of living with chronic conditions in underrepresented populations.
Advocating for Policy Change
Our Policy Work Includes:
- Working with lawmakers to increase funding for research focused on health disparities.
- Advocating for legislation that mandates diversity in clinical trials.
- Educating policymakers on the unique challenges faced by BIPOC and underserved communities.
How We Empower Communities
Training Sessions and Online Seminars
Health Equity Talks
Virtual and in-person events featuring experts discussing systemic challenges and actionable solutions.
Patient Advocacy 101
Teaching individuals how to advocate for themselves in medical settings and research opportunities.
Patient-Centered Tools and Resources
Clinical Trial Finder
An interactive tool that helps patients locate trials tailored to their conditions and demographics.
Health Literacy Quiz
Assess and improve your understanding of clinical research and healthcare options.
Patient-Centered Tools and Resources
Diversity in Research
Partnering with local organizations to spread awareness about the importance of diverse representation in research.
Community Engagement
Hosting town halls and info sessions to connect with patients and families directly impacted by health disparities.
Impact of Our Advocacy & Research
Future Goals: By the Numbers
Our Aspirations:
- 30%+ Increase in BIPOC Representation in clinical trials as a direct result of our advocacy and community engagement efforts.
- $2 Million+ in Funding Secured to support groundbreaking research on MS and other chronic illnesses in underserved populations.
- 10+ Active Research Collaborations with leading universities and institutions to drive innovation and inclusivity in healthcare.
Impact Stories
What Our Supporters Say
Discover heartfelt stories and feedback from our supporters who share how our initiatives have made a meaningful impact in their lives and communities.
Why Advocacy & Research Matters
The Problem:
- Clinical trials often exclude BIPOC participants, leading to treatments that may not work effectively for these populations.
- Chronic illnesses disproportionately affect underserved communities, yet these groups receive the least attention in research.
The Solution:
Get Involved in Advocacy & Research
For Patients:
Explore clinical trials tailored to your needs.
Learn how to advocate for diversity in healthcare.
For Researchers & Institutions:
Partner with us to design inclusive and culturally competent studies.
Access resources to enhance representation in your trials.
Patient-Centered Tools and Resources
Join our campaigns to push for policy changes that advance health equity.
Attend workshops and events to deepen your understanding and impact.
GET INVOLVE NOW
Be the Change You Wish to See
Join us in making a difference! EWN has successfully funded over 12,503 charity projects, improving the lives of 25 million people across the globe. Be part of this journey to bring hope and equality to communities worldwide.